Abstract
Objective
To determine the measurement properties of PRECIOUS, a parent-reported measure of Quality of Care (QoC) for seriously ill children across care settings and illness trajectories.
Study design and setting
Parents self-administered baseline and two-week follow-up surveys online. Exploratory Factor Analysis (EFA) was used to determine PRECIOUS’s factor structure and select items. Internal consistency was evaluated with Cronbach’s α, test-retest reliability with intraclass correlation coefficients (ICCs), and convergent validity with Spearman’s correlations between PRECIOUS scales and subscales of Measure of Processes of Care (MPOC-20) and Quality of Children’s Palliative Care Instrument (QCPCI).
Results
Of 152 parents [108 (71%) mothers, 44 (29%) fathers] who completed the baseline survey, 123 (81%) completed follow-up. EFA grouped PRECIOUS into 5 scales: Collaborative and goal-concordant care (12 items), Caregiver support and respectful care (15 items), Access to financial and medical resources (5 items), Reducing caregiving stressors (9 items), and Hospitalization-specific processes (4 items). Root Mean Square Error of Approximation was 0.040 and Comparative Fit Index was 0.980. Cronbach’s α ranged from 0.85 to 0.96. ICCs ranged from 0.72 to 0.86. Significant correlations with MPOC-20 and QCPCI confirmed convergent validity. The original 56-item tool was reduced to 45-items.
Conclusion
PRECIOUS demonstrates satisfactory measurement properties for assessing QoC for seriously ill children.
Date and Time
19 Feb 2024
Authors
Ang FJL, Cheung YB, Gandhi M, Ostbye T, Malhotra C, Malhotra R, Chow CTC, Chong PH, Amin Z, Tan TSZ, Tewani K, Buang SNH, Finkelstein EA