Eric Finkelstein, Director, Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore
Rebecca Dent, Nesaretnam Barr Kumarakulasinghe, Lee Lai Heng, Irene Teo Eng Ai, Chetna Malhotra Semra Özdemir, Rahul Malhotra, Cheung Yin Bun, Nivedita Nadkarni, Alethea Yee, Grace Yang, Ravindran Kanesvaran, Patricia Yeo, Noreen Chan, Wu Huei Yaw, Chin Soh Mun, Hum Yin Mei Allyn, Wee Lee Yeo, Richard Harding
In Singapore, little is known about the experiences of patients with advanced cancer, such as quality of care received and how patients transition across different health care settings, or about the factors that influence patient and caregiver quality of life. This study, is a first-of-its-kind longitudinal study in Singapore to prospectively capture health care utilization, cost, quality of care and quality of life indicators for a sample of patients with advanced cancer, their primary informal caregivers and their physicians using both administrative and survey data collected until patient’s death.
The primary objective of this study is to describe trajectories of quality of life of patients with advanced cancer and their predictors, to describe the transitions between care settings for such patients and to quantify healthcare utilization and costs. Secondary objectives are to investigate preferences for diagnostic and prognostic information, preferences in end of life care, perceived quality of care, and to assess the areas of burden reported by caregivers over time as patients approach end of life.
Prospective study of patients with advanced cancer. 650 patients and their primary informal caregivers are followed every 3 months until death of patient. Treating physicians of the patients are invited to take part in the study.
National Cancer Centre Singapore
National University Hospital
The results from this study will help assess patient and caregiver preferences for end-of-life care, perceived quality of communication with the physicians and the extent to which pain and other symptoms are adequately managed in patients. Each of these is a priority area identified in Singapore’s National Strategy for Palliative Care as having significant knowledge gaps.
Teo, I., Singh R., Malhotra C., Ozdemir S., Dent R.A., Kumarakulasinghe N.B., Yeo W.L., et al., (2018). Cost of Medical Care of Patients with Advanced Serious Illness in Singapore (COMPASS): prospective cohort study protocol. BMC cancer 18, no. 1 (2018): 459
Project Start Date:
18 January 2016
Ng Jin Ying: firstname.lastname@example.org