INTRODUCTION
The PaRental Experience with Care for Children with serIOUS illnesses (PRECIOUS) instrument is a validated 45-item parent-reported experience measure assessing the quality of care for children with serious illnesses across healthcare settings.
The instrument takes approximately 10 minutes to complete and supports comprehensive evaluation of parental perspectives on care delivery. Hundreds of multi-disciplinary experts and parents of children with serious illnesses have contributed to its development and validation.
The validated 10-item short-form (PRECIOUS-SF) can be completed in less than 3 minutes. PRECIOUS-SF offers a quicker but less detailed assessment and can be incorporated into routine clinical assessments to obtain regular, timely assessment of service provision.
Sites may consider starting with PRECIOUS-SF for routine use. Where scores suggest potential gaps in care, or where more detailed evaluation is required, the full PRECIOUS instrument may be more appropriate.
Both measures assess quality of care across healthcare settings (e.g. hospital, community, home), multidisciplinary care contexts, and throughout a child’s illness trajectory.
CHECK IT OUT
The following video introduces the PRECIOUS and PRECIOUS-SF measures.
Both PRECIOUS and PRECIOUS-SF are self-administered parent-reported questionnaires. Instructions for respondents are included within each instrument.
Each instrument generates scores for individual domains (subscales) of care quality. There is no overall total score.
Conversion algorithms are available to estimate PRECIOUS domain scores from PRECIOUS-SF responses, enabling:
Programming statements for use with Stata are available upon request.
OPPORTUNITIES TO COLLABORATE
PRECIOUS is currently available in English with additional language versions in development.
We welcome collaboration on:
- translation and cultural adaptation
- validation studies
- implementation in clinical services
- quality improvement initiatives
Please contact us at lcpc@duke-nus.edu.sg